Springs Boy Suffers from Rare Disease
Save Email Print
Bookmark and Share
Updated: 5:17 PM Aug 2, 2010
Springs Boy Suffers from Rare Disease
One Colorado Springs family is asking for the community's help as they try to get treatment for their son who suffers from a rare disorder.
Posted: 5:18 PM Jul 31, 2010
Reporter: Lisa McDivitt
Email Address: LMcdivitt@kktv.com
width:171 and height: 200 and picwidth: 171 and pciheight: 200
Font Size:

One Colorado Springs family is asking for the community's help as they try to get treatment for their son who suffers from a rare disorder.

Kaden Fisher was born at 26 weeks, and began showing signs of the disease, dysautonomia, when he was six months old. Now he's four, and he struggles daily with some of the conditions that are a result of the disease that prevent his body from self-regulating.

The disorder means that Kaden's blood pressure goes up and down without warning, he has difficulty digesting food properly, and he has trouble regulating his breathing. At times, his family says his body can't even tolerate wearing clothes.

"At any moment, our son could die, and we wouldn't even see it coming," said Julie Fisher, Kaden's mom.

The Fishers have three other children, and Julie's husband, Kaden's dad, works full-time to provide for the family. After doing a lot of research, the Fisher's have found a doctor in Virginia who specializes in treating dysautonomia. The doctor, Hasan Abdallah at the Children's Heart Institute, has a son with the disease, and with treatment, his son has lived into his 20's. The Fishers now feel that Dr. Abdallah is their only hope for giving Kaden the life he deserves.

"All we want for our son is to give him a quality of life and to extend his life as much as we can," said Julie. "He's a very bright little boy, he's very aware of what's going on. And, unfortunately, the signals going from his brain to his body are interpreted and they're not the right signals, so to speak."

The stresses on the Fisher family do not just include caring for Kaden, but also the medical bills associated with keeping his body regulated. They feel their one hope is visiting Dr. Abdallah in Virginia, but they can't take a normal car trip due to Kaden's condition. They tell 11 News they either need to fly out to Virginia or borrow an RV so that Kaden can travel there safely.

They are asking for the community's help, either through loaning them an RV, or through donations to a fund to buy plane tickets. If you are able to contribute, they have set up a fund through U.S. Bank called "The Littlest Man." The account number is 203683886071.

KKTV.com Features

KKTV and our Partners are proud to make Moms life easier…click here for more information

Click here for more information from our local health care specialists.

Do you have a story idea? Want to report breaking news? Call our newsroom at (719) 578-0000 or e-mail News@kktv.com.

Click Here to have KKTV come to your school!

Watch full episodes of your favorite CBS shows right here on KKTV.com.
Latest Blogs
  • EAT IT: Almonds - (Stacia Naquin)
    Keep your energy up when things get crazy. All you have to do is keep this super food handy at your desk.
  • Beware of Crooks Using Best Buy's Name (Betty Sexton)
    Crooks just sent a message to an 11News smartphone. It claims we've been selected for a $1,000 shopping spree. It's all a bunch of baloney!
  • Make a quick $250, hardly! (Betty Sexton)
    Thanks to Christine for telling me about this scam. She received a check in the mail from a group using the name American Consumer Opinion. It wasn't the legitimate Texas research company... just a crook looking to rip her off!
  • Treat It Like Thanksgiving - (Stacia Naquin)
    You don't have to sit on the sidelines at that Super Bowl party just because you vowed to make 2012 a healthier year. Here's some advice to keep yourself on track, after indulging during the season's biggest game!
  • "Be Prepared" is Good Motto for Storm Coverage
    Over in the KKTV 11 Weather Center, the radar's showing the snow moving in. Chief Meteorologist Brian Bledsoe says this storm has the potential to bring the most snow we've seen in 5 and 1/2 years, so it is "all hands on deck" and "batten down the hatches", as the newsroom makes its own preparations for this Groundhog Day Storm.