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Updated: 5:17 PM Aug 2, 2010
Springs Boy Suffers from Rare Disease
One Colorado Springs family is asking for the community's help as they try to get treatment for their son who suffers from a rare disorder.
Posted: 5:18 PM Jul 31, 2010Reporter: Lisa McDivitt Email Address: LMcdivitt@kktv.com |
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One Colorado Springs family is asking for the community's help as they try to get treatment for their son who suffers from a rare disorder.
Kaden Fisher was born at 26 weeks, and began showing signs of the disease, dysautonomia, when he was six months old. Now he's four, and he struggles daily with some of the conditions that are a result of the disease that prevent his body from self-regulating.
The disorder means that Kaden's blood pressure goes up and down without warning, he has difficulty digesting food properly, and he has trouble regulating his breathing. At times, his family says his body can't even tolerate wearing clothes.
"At any moment, our son could die, and we wouldn't even see it coming," said Julie Fisher, Kaden's mom.
The Fishers have three other children, and Julie's husband, Kaden's dad, works full-time to provide for the family. After doing a lot of research, the Fisher's have found a doctor in Virginia who specializes in treating dysautonomia. The doctor, Hasan Abdallah at the Children's Heart Institute, has a son with the disease, and with treatment, his son has lived into his 20's. The Fishers now feel that Dr. Abdallah is their only hope for giving Kaden the life he deserves.
"All we want for our son is to give him a quality of life and to extend his life as much as we can," said Julie. "He's a very bright little boy, he's very aware of what's going on. And, unfortunately, the signals going from his brain to his body are interpreted and they're not the right signals, so to speak."
The stresses on the Fisher family do not just include caring for Kaden, but also the medical bills associated with keeping his body regulated. They feel their one hope is visiting Dr. Abdallah in Virginia, but they can't take a normal car trip due to Kaden's condition. They tell 11 News they either need to fly out to Virginia or borrow an RV so that Kaden can travel there safely.
They are asking for the community's help, either through loaning them an RV, or through donations to a fund to buy plane tickets. If you are able to contribute, they have set up a fund through U.S. Bank called "The Littlest Man." The account number is 203683886071.
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