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Updated: 4:00 PM Jul 21, 2009
Devastating Diagnosis For Colorado Springs Family
One in 18,000 males has a form of a genetic disease called Adrenoleukodystrophy. But for young boys, it is almost always fatal. There has been some success with bone marrow transplants and that is what Chrissy Vanloon is hoping will save her son's life. Posted: 10:00 PM Jul 9, 2009Reporter: Stephanie Ross Email Address: sross@kktv.com  PLAY VIDEO: Child Battling Potentially Fatal Disease |
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Posted by: CM
Location: COLORADO SPRINGS
on Jul 16, 2009 at 06:08 AM
This is a very sad situation and I pray for healing for this little boy. I would like to say to LKS though, who stated, "Adoption is one way to go, but it isn't the same as carrying and giving birth to your own flesh and blood.", Shame on you! As an adopted child myself, and a mother of an adpoted child and a biological child, there is no difference in the love you have for your child, wether biological or adopted! You seem to the "rude and inconsiderate" in making such a statement as this. [ Report Abuse ]
Posted by: Shannon
Location: Colorado
on Jul 15, 2009 at 09:45 PM
Posted in response to the previous comment from person in Dillon. WHAT IN THE WORLD ARE YOU THINKING MAN or women. I know this family and are a shining example of what a family should be, I dont know what sort of world you live in but why cant you just wish this family health and properity. Take that comment BACK!! [ Report Abuse ]
Posted by: Dillon
on Jul 15, 2009 at 03:39 PM
Take this child from this family and give him parents who think of a child first ! [ Report Abuse ]
Posted by: Crystina
Location: Central Florida
on Jul 15, 2009 at 01:31 PM
Chrissy, please let me know if there is anything we can do from here. I have posted your story on our network and we are accepting donations on Ryan's behalf. Where do we make those donations from out of state? Please let me know. Give Ryan and his sisters big hugs from his aunt and cousins. We love you all and keep you in our prayers. [ Report Abuse ]
Posted by: knows better
on Jul 14, 2009 at 10:46 PM
its blatantly truthful..i will have some extra diapers to borrow to you when your genes begin to fail as all of us will face sooner or later(unless someone who is less considerate to people than you are hastens your departure)..trouble is your genes were so strong in your youth that you didnt need any weak gened folks around..but now there is no one who cares to be considerate enough change YOUR diapers..why would someone live and have children w/ such odds poo poo pants [ Report Abuse ]
Posted by: KelcyCo
Location: Colorado
on Jul 14, 2009 at 10:11 AM
An acquaintance of an acquaintance lost a child to a similar disease but they had no clue it was a recessive trait in both parents then until that time. This woman knew each child she has would have a 25% chance of having this disorder. Her brother died of it. Would we allow someone to put a gun to a child`s head with those odds? No. So why is it okay for known health problems to be condoned by society. If you have a genetic illness either do IVF and screen the embryos first, use donor eggs and sperm, or don`t have children of your own. If you say you could not love children that were not your own then you probably shouldn`t be having children in the first place. ARGH!! People who pass deadly genes such as this to their kids on purpose should have their heads examined. And I do not mean this as rude or inconsiderate but as blatantly truthful. [ Report Abuse ]
Posted by: LKS
Location: Colorado Springs
on Jul 14, 2009 at 09:23 AM
As I read these comments, mainly the rude and inconsiderate ones, I wonder what has happened to society. Yes, Chrissy very well could have adopted, but how was she to know that one of her children would actually contract the disease. Adoption is one way to go, but it isn't the same as carrying and giving birth to your own flesh and blood. For those of you who would are making the rude and inconsiderate comments, what are you going to do if one day a similar situation happens to you or someone you love? Will you be the first one to cast the first stone? I think not. It's different when it hits close to home compared to a stranger you do not know. This little boy did not ask for this. Did you ever stop to think that maybe God is testing humanity in some way? To Chrissy and her family, my family will keep you and Ryan in our thoughts and prayers! [ Report Abuse ]
Posted by: Richard
on Jul 14, 2009 at 08:09 AM
The only way I would give money is if the kid is going to be removed from this family's care. If she was that irresponsible with him now and did this to him, why should his parents be in charge of anything else to do with him including raise him especially with her hands out now. He needs to be placed in a home with caring, loving parents who would never have chosen this fate for a child. [ Report Abuse ]
Posted by: Katherine
Location: New Jersey
on Jul 13, 2009 at 07:36 PM
Chrissy, First off I want to say I am so sorry to read about your little boy. There is nothing more devestating than a dx such as this. My son was dx with Metachromatic Leukodystrophy (MLD) 2 years ago at 3 years old and received a cord blood transplant at Duke. He did well transplant wise. I will pray for your boy. Please don't listen to some of these rude comments I have read on here. I am disgusted and can't fathom why people would write such nasty comments. If you ever need to talk to another parent you can e-mail me kath30@comcast.net. You also might want to start a caringbridge site (www.caringbridge.org) to keep the people you want informed of the progress. Also how can one donate who lives out of state? Hang in there! Jareds site is www.caringbridge.org/visit/jaredkerr You can read about his transplant on this site [ Report Abuse ]
Posted by: cindy lightfoot
Location: arkansas city, kansas
on Jul 13, 2009 at 07:00 PM
to ald - adrenoluekodystrophey family. if you do the chemo before the child has the symptoms, it can keep it from kicking in. after symptoms, it makes them worse faster. i didn't find out until my son jesse had symptoms. the doctor said, once symptoms kick, in you should not do the chemo, we didn't and used lorenzoe's oil and dhea a natural steroid over the counter. he he lived to the age of 17. he survived 11 yrs. from on set of symptoms.if you can't get lorenzoe's iol you can use ktc mustard seed oil. this product has the same as lorenzoe's oil. bless you and your family. mrs. cindy lightfoot [ Report Abuse ]
Posted by: jamie barlow
Location: california
on Jul 13, 2009 at 06:40 PM
If you could please forward this to the family. I also have a son with ALD and he is doing quite well with our regimine. My sister also has a son and they live in wyoming. There is lots of support and families willing to help that are also affected by this. 661-943-2150 is my number. www.fightald.org, www.ulf.org, www.myelin.org, ac4ald.com, yahoo groups called ALDkids. thank you Jamie Barlow [ Report Abuse ]
Posted by: Lisa
Location: Colorado Springs
on Jul 13, 2009 at 03:12 PM
How can my family and I get involved in helping this family instead of donating? I would like to help get their house the way it needs to be for Ryan. Thank You. [ Report Abuse ]
Posted by: TB
Location: Col. Spgs
on Jul 12, 2009 at 04:50 PM
First of all, thanks to a wonderful and (mostly) caring community.I am on the Family support team and know how much your comments mean. Having spent 4 hours listening to the Dr. and knowing all involved,if you really want to help- sound off, help the KID or anything positive, contact MS. Ross above and/or: 1Donate to ENT 2.Donate to Sunrise UMC in Stuaffer name for fixing house,gas money, things for two sibilings, sendMAcD. or other cards. 3.Donate to Ronald McDonald House ( always) 4.Volunteer at Children's Hospital-Denver or, yeah, right here in town!! Talk about need and ,"hands-on" wanna play, it's fun? 5.Donate free tickets such as those given to go to the Rodeo ( suggestions= movies?Train Rides,) He has a few more weeks before operation!) 6. There is always the wonderful MAKE A WISH FOUNDATION.. There, doing something like these will feel SO much better than blogging, judging etc. Of course, prayers are always their source of comfort, but we are called to actually help! [ Report Abuse ]
Posted by: KKTV
Location: Southern Colorado
on Jul 12, 2009 at 02:34 PM
Those of you who've offered to help, please contact reporter Stephanie Ross by e-mail. sross@kktv.com [ Report Abuse ]
Posted by: Jen
Location: C/S
on Jul 12, 2009 at 02:10 PM
We now know how many ignorant people live in colorado springs, This is a child we are talking about, you have no right to judge them. Ryan and his family deserve kindness and help from this community, not to be condemned for her having a baby in which she loves. Chrissy has a very loving family and will do anything she can for them, and I will stand by her and help her in any way I can. I do hope there are more compassionate people in C/S than ignorant. [ Report Abuse ]
Posted by: BK
Location: CSprings
on Jul 12, 2009 at 02:41 AM
OK here's an update Ryan got to go to the Rodeo on the 11th and had a blast. For those of you who would cast the first stone and judge the mother of Ryan remember this, He who is without SIN cast the first stone! I have learn one thing since reading these comments no matter who,or where you are in this world there is always going to be bigots who love to criticize as well as condemn others. So to those of you who this shoe fits ( you know who are!)not so far in the distant future GOD will exact his Revenge for your judgments on others. Judge not least ye be Judged. So if I were you,I would be looking over my shoulders or stay inside during Thunderstorms. I've said enough but know this,Ryan is a GREAT kid who deserves to live life to the fullest. For those who are being negative toward this family better start looking over them shoulders. God just LOVES the little children all the children of the world!!! God bless all the positive thinkers and all others better get on your knees... [ Report Abuse ]
Posted by: JAB
Location: Colorado Springs
on Jul 11, 2009 at 06:50 PM
ME - BABA Your comments towards me are mistaken. I am on Chrissys side here. Chrissy is my friend. Furthermore even if I wasn't we are not here to judge that is Gods job. [ Report Abuse ]
Posted by: MR. INFORMATION
Location: CSPRINGS
on Jul 11, 2009 at 04:57 PM
HELLO, IF YOU WANT TO KNOW WHERE YOU CAN FIND INFO ON DONATING BONE MARROW OR ANYTHING REGUARDING THIS ISSUE PLEASE GET AHOLD OF KKTV THANK YOU GOD BLESS [ Report Abuse ]
Posted by: ME
Location: CSPRINGS
on Jul 11, 2009 at 04:50 PM
EXCUSE ME THE LAST POST WAS DIRECTED AT ALICE AND JAB NOT JULIE SO YOU JAB AND ALICE WILL BURN IN HELL FOR YOUR RUDE REMARKS GET A LIFE [ Report Abuse ]
Posted by: BABA
Location: CSPRINGS
on Jul 11, 2009 at 04:46 PM
TO: JULIE AND ALICE: I GUESS YOU ARE PERFECT AND I ALSO GUESS ACCORDING TO YOU IDIOTS THAT EVERYONE IN THE WORLD WHO IS DEFINATELY BORN WITH A DISEASE OR PROBLEM IN SOME WAY SHOULD NOT HAVE KIDS WELL THERE YOU HAVE IT OUR HUMAN RACE IS GOING TO END ACCORDING TO YOU IDIOTS ITS PEOPLE LIKE YOU THAT MAKE ABORTION LEGAL AND ALSO MURDER SHUT UP [ Report Abuse ]
Posted by: Eryn
Location: Colorado Springs
on Jul 11, 2009 at 11:11 AM
The issue at hand is not about whether she should have had children. The bottom line is that this little boy (that did not ask for any of this) needs help. You can choose to judge or you can do the right thing. If you choose to judge, keep it to yourself. How is saying hateful things helping a situation that can't be changed? This could happen to anyone, there is no guarantee that any baby born is going to be healthy. Life is precious, and he was obviously born for a reason. How can any of you look at his face and be so hateful? I am a true believer in Karma and everything you think, say, and do to others will come back to you eventually. We all need to come together as a community and help out this little boy. [ Report Abuse ]
Posted by: Alice
Location: Colorado Springs
on Jul 11, 2009 at 10:23 AM
I have a child with a disability. Knowing that, I've chosen not to have more children. It isn't fair to them when I know that genetically I have a greater chance? This woman is incredibly selfish- there are other ways of having children (adoption, etc.) But to have children that you know will likely suffer during their short life--- Shameful. She is no hero. [ Report Abuse ]
Posted by: JB
Location: Colorado Springs
on Jul 11, 2009 at 08:12 AM
I agree that organizing a group to help prepare their home to be sterile would be an excellent idea. I am sure many people, churches, & businesses would be willing to help. As for those who have been heartless with their responses... Where is your sense of compassion and humanity? Every individual is a carrier (known or unknown) for genetic diseases. She could not have known with certainty that she would conceive a boy AND that he would inherit this disease. It took great strength to continue the pregnancy and raise her son knowing what might occur in the future. And despits all the stress and grief I am sure no one would wish away this young boy's existance... or that of his twin sister. My prayers are that this little boy lives a long full life. May he teach us all to value our blessings, health and family. May he bring out the giving nature and compassion of this community. Remind us that life is more about giving than our own selfish wants and monetary gain. Prayers! [ Report Abuse ]
Posted by: Holly
Location: Black Forest
on Jul 11, 2009 at 05:52 AM
Chrissy, you and your family are in our prayers. As a mother, my heart is aching for you and we will continue to pray for a miracle for your family. [ Report Abuse ]
Posted by: Julie
Location: Colorado Springs
on Jul 10, 2009 at 11:42 PM
Furthermore....Ryan is a twin...was the mom supposed to abort both babies because of the POSSIBILITY that one might get sick?! You all are pathetic...he's a child...how dare you! [ Report Abuse ]
Posted by: JAB
Location: Colorado Springs
on Jul 10, 2009 at 11:12 PM
I am shocked by the previous comments. Shocked that people can be so insensitive. Chrissy is one of the kindest individual I know. We should be sending her and her family our love and prayer. Do unto others as you would have them do unto you. [ Report Abuse ]
Posted by: Julie
Location: Colorado Springs
on Jul 10, 2009 at 11:03 PM
You nasty people who are judging this family should be ashamed of yourselves! I know this family personally....they have nothing but LOVE and well wishes for their children! Two of them do NOT have the disease yet one does. I carry the gene for cystic firbrosis, yet have 4 healthy children. This mother who you criticize of negligence has worked herself disabled taking care of your mothers, brothers, sisters, fathers and friends in the hospitals and nursing homes. The parents owe you NO explaination. The fact remains that he is a beautiful little boy who loves his family, Bob the Builder...his tiger (am I right mom and dad...lol?!) and loves to play AND had a chance to live a normal, healthy life. That isn't the way it happened and now he needs your help...yes...HE needs your help, quit focusing on everything else! It doesn't matter how or why....you "scum of society people" leave this family alone and just wait in your holes until someone else comes along to attack! [ Report Abuse ]
Posted by: BER
Location: COLORADO SPRINGS
on Jul 10, 2009 at 10:06 PM
TO HEY KNOWS BETTER LOCATION : GET A LIFE YOU SELFISH UNEDUCATED PEICE OF TRASH PRAY DONT HATE [ Report Abuse ]
Posted by: knows better
on Jul 10, 2009 at 09:20 PM
what good is figuring out the science of bone transplant if it isnt worthy enough for this child..dont fall to the disgusting temptation of putting a price on this boys life..all will pay a hefty price to survive unless taken by some unexpected circumstance..call ME when your diapers need changed,all riddled w/ dementia from old age..MAYBE i have some desetin for your chapped hiny or the bruised ego that cant contain your worthiness no longer!!**do you get it or do i really have to go on** donate yourself to something to find an ounce of redemption in you..hurry before its too late [ Report Abuse ]
Posted by: Jenna
Location: CO Springs
on Jul 10, 2009 at 08:56 PM
Any info on where to test to be a match or where to donate anything would be appreciated. Any help I can give, I will. [ Report Abuse ]
Posted by: UNLEASHED
Location: CSPRINGS
on Jul 10, 2009 at 08:21 PM
FOR THOSE OF YOU WHO ARE PERFECT CAST THE FIRST STONE AND FOR THOSE OF YOU WHO THINK YOU LIVE LIFE IN THE EYES OF OUR FATHER GUESS WHAT TE STONE YOU THROW IS YOUR OWN DEMONS DESTROYING YOU... [ Report Abuse ]
Posted by: RMD
Location: Colorado
on Jul 10, 2009 at 07:10 PM
For you people who are being so downright rude and hateful, esp. you Christy with that mind you shouldn't have kids, and for Margaret, she has been taken responsibility she has been taking her child to be checked and hasnt asked for help doing that now has she? Why don't you have some respect there was a chance this little boy would have had a normal life, why should she have killed him do you think that would have made things any better? God has a plan for everyone and everything and this is happening for a reason, if you have nothing nice to say then maybe you shouldnt have said anything because rotten people like you is who is going to end up in hell! I WILL PRAY FOR THIS FAMILY because miracles do happen and to all who are offering to help thank you for helping this family if i were near the springs i would try to help out too !! [ Report Abuse ]
Posted by: knows better
Location: co springs
on Jul 10, 2009 at 05:58 PM
i agree w/ christy, christy was born w/ the genes that will kill her and a carrier at that!! why should anyone have to have kids w/ her..defective as they might be..her parents AND her have choices when it comes to the reproductive organs(sneaky little things)**just in case the sarcasm might be lost in the comment** we could always drag mom out of the house and burn the witch at the stake..seemed to work well in the past when mothers couldnt bear healthy children(non-defective,uncursed)..or maybe something a little more recent,a gas chamber from krakow for the little defect..im sure these two steps will satisfy the requirements for others to make better decisions and to rid the taxpayer of an iota of ethical responsibility..thank goodness for the eugenic movement..without it,more christy [ Report Abuse ]
Posted by: anon
Location: cs
on Jul 10, 2009 at 04:42 PM
I have to agree with Margaret; there are plenty of children out there wanting a home and this lady could have adopted a child instead of bringing a child into this world who is going to have a lot of pain and suffering. I'm all for helping the child - it's not his fault - but his mother is another story. [ Report Abuse ]
Posted by: sue
Location: colorado springs,co
on Jul 10, 2009 at 04:05 PM
UNBELIEVEABLE!! that this woman would knowingly have children after watching her little brother die, and being brought out in body bag. ,What were they thinking!! SHE KNEW !!!I agree she should be forced to be fixed, Some people don't deserve to have kids. [ Report Abuse ]
Posted by: hates selfish women who like to hear themselves talk
on Jul 10, 2009 at 03:48 PM
Just because the mom MAY have been irresponsible, doesn't mean we should take it out on the child. This child did nothing to deserve this, the life sentence he has received. You can never know for sure what defects are going to be passed on to any child. To whatever and christy: its great that you have your opinion on this, but it is truly about saving a little boys life. If you are too high and mighty to help that is fine. Im sure you two are some of the people that speed down my street speeding past my children as they swerve their bikes off the road. Wait til someone like me pulls you out of your car. Your selfish fate will come to you and yours. [ Report Abuse ]
Posted by: Concerned
Location: Colorado Springs
on Jul 10, 2009 at 03:39 PM
To Christy, Whatever and Margaret.... Not trying to start a fight on here, but why should we let an innocent child suffer? Just because the mother knew she was a carrier, yes she should have prevented child birth, but how can you let an innocent child suffer for the mistake, or whatever you may want to call it, of the parents? Yes I agree the mother should have done more and should not have had children knowing about this condition, but for myself, I can not sit here and let a child suffer for the mistakes of the parents. It is not his fault, he did not ask to be born. I'm just trying to get you to see the other side of this is all. I respect your comments though. [ Report Abuse ]
Posted by: Don
Location: Colorado Springs
on Jul 10, 2009 at 03:19 PM
Yeah, It seems harsh, but if there is an know genetic defect why carry the disease to another generation. Maybe adoption is a better option for somebody with this condition that wants children. $500,000 for a bone marrow transplant that may or may not help anything is a lot of money. [ Report Abuse ]
Posted by: christy
Location: cs
on Jul 10, 2009 at 02:38 PM
I agree with Margret, If you knew full well that this disease was in your genes and your a carrier , why in the hell , you would bring a kid in this world, to see him die. its seeems stupid and selfish. and to have it confirm. . what an idiot. why should we the taxpayers, pay for this child when it was the mom who wanted this child in the first place. I dont have kids. why should I pay for someone else defective child.People have choices when it comes to the reproductive organs. and espeically that this woman was a carrier. and knew she would have a kid with a defect. [ Report Abuse ]
Posted by: Whatever
Location: Colorado Springs
on Jul 10, 2009 at 02:33 PM
That this woman had children knowing first-hand what kind of problems they would have is completely and totally irresponsible. Thanks to her selfish immaturity, her kid now has to go through a nightmarish bone marrow transplant, and she expects people to contribute and pay for this, on top of it all? Lady, you need to have your children removed from your care and be forcibly sterilized. Irresponsible, and almost downright criminal. [ Report Abuse ]
Posted by: Margaret
Location: Colorado Springs
on Jul 10, 2009 at 01:24 PM
It's different when someone's child has medical issues that couldn't be forseen, but according to this story, she KNEW she was a carrier and CHOSE to have a child that was pretty much guaranteed to have this disorder. Seems like she brought all this on herself - why expect others to help her now. People need to take more responsibility for their own actions. [ Report Abuse ]
Posted by: Scott & Andrea Pinegar
Location: Arvada, Co
on Jul 10, 2009 at 12:14 PM
You are always in our prayers! [ Report Abuse ]
Posted by: Clarissa
Location: c/s
on Jul 10, 2009 at 11:57 AM
I would also like to be tested as a match...just need information on how please! [ Report Abuse ]
Posted by: knows better
on Jul 10, 2009 at 10:22 AM
sorrowful to hear the trajedy once..but to experience it twice, prayers for you arent enough..we as a community must aid them anyway we can..my child is diagnosed w/encepholopathy static and we need assistance..i cant imagine losing her also, because of her problems, then multiply that times two..yes, at the end of the day devastating..help them because YOU CAN..dont ever forget the privelege to be offered to help someone truly in need..lets get on it colorado springs [ Report Abuse ]
Posted by: Kelsey
on Jul 10, 2009 at 08:55 AM
Hey KKTV: Is there a place we can go to donate low chemical paint/ flooring material for their house? Can we get a group together to fix their household problems for them? You have at least ONE willing volunteer here, please try to set something up for the family, I know people who would LOVE to help out beyond giving money! [ Report Abuse ]
Posted by: RMMA Wife
Location: Colorado Springs
on Jul 10, 2009 at 02:25 AM
This little boys father works with my husband and Rocky Mountain Material. They have sent out to all employees flyers with the donation information on it. Please people, if you can help in any way, please do so. This little boy needs to live a full life!! [ Report Abuse ]
Posted by: Nakita
Location: Colorado Springs
on Jul 9, 2009 at 10:18 PM
I would like to know if there is anyway that I could be tested to see if I was a bone marrow match? I would willingly give my bone marrow to save your son with no questions asked. [ Report Abuse ] |
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What is wrong with you people? does the high altitude affect your brains? Everyone who brings a child into this world takes a chance. Chrissy and her family are wonderful people that have brought a son into this world that just may be the key to curing this terrible monster. I'm sure that she didn't bring him into the world just to watch him die. She has joined several groups that pool their experiences to help find a cure and to help moms through the agony. If you want to do something constructive, help to find a cure for ALD and stop your self righteous attitudes. Put yourself in the place of Chrissy and all the other moms who have to devote their lives to raising a son who may die or be permanently disabled. Join some of the groups these moms are in and learn what it's like. Get off your contemptible asses and do something to help not sit at your keyboards and pass judgment. I did and I feel good about doing so and I never had a son to worry about God Bless you Chrissy John
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DILLON: SHUT UP YOU DUMB PERSON YOU WILL GO TO HELL I GUESS YOUR THE GOD SYNDROME HUH SHOW YOURSELF AND ILL CLOSE THAT MOUTH FOR YA PERMANENTLY LEAVE THIS FAMILY ALONE YOU IDIOT
[ Report Abuse ]
Sounds almost like Chrissy Vanloon has Munchausen by proxy syndrome (MBPS). She actually procreated knowing she would pass this on.
[ Report Abuse ]
I KNOW OF THIS FAMILY THEY NEED TO HAVE THEIR HOME ADJUSTED OR REMODELED TO ACCOMODATE RYAN WHO I PRAY WILL BE HOME IN 8 MONTHS ALL GOING WELL FROM HOSPITAL HIS ENVIRONMENT NEEDS TO BE STERILE WHICH MEAN THE VANLOON HOUSE NEEDS ALL TILE IN ENTIRE HOUSE AND FRESH NON PORUS PAINT AND A ROOM FOR RYUAN BUILT AS A SAFE CLEAN BUBBLE FREE OF ANY DUST THE EXPENSES FOR THESE ARE GREAT ANY MATERIALS FROM ANYONE AND MAN POWER WILL BE NEEDED PLEASE HELP THEM THANK YOU
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how can you sit here and judge this woman? you all sit behind your computer acting self rightous as if you have never made a mistake before in your life, although ryan and bella shouldnt be counted as mistakes. god put them on this earth for a reason, and chrissy gave them a chance at life. you judge as if you dont mess up sometimes. good people forgive and help those in need. get over yourselves enough to realize this isn't about chrissy it is about ryan. HE needs your help to save his life because he CAN be saved. and for all of you so called christians out there, remember god forgives and loves and you are supposed to live in his image not just go through days following rules. ryan was born. we cant change that. god has plans for him and we need to help make that happen. please help give him a shot at life.
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TB, you are right-I shouldn't have called anonymous an idiot. Colorado Springs has an enormous Christian population and you would think with that we would have a very loving community, but unfortunately they can be some of the most judgmental and self righteous people. True Christians don't judge, they don’t claim to be perfect, they make mistakes like everyone else, they forgive and are forgiven. The Prayer of Saint Francis is always comforting in difficult times- "Lord, make me an instrument of Your peace. Where there is hatred, let me sow love. Where there is injury, pardon, Where there is doubt, faith, Where there is despair, hope, Where there is darkness, light, And where there is sadness, joy. O Divine Master, grant that I may not so much seek to be consoled, as to console; To be understood, as to understand To be loved, as to love; For it is in giving that we receive It is in pardoning that we are pardoned; And it is in dying that we are born to eternal life Amen
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Wow, now we're up to name calling!People, I know this family, they are ACTIVE members in a local large church here. Maybe you go their on Sundays?What do we learn? Forgivenss-right? Ryan does have purpose-he's given me so much unconditional love, no words for. His sisters are adorable and know more kindness than many of you sad judemental types.Glad to learn of caringbridge.That's real help. Those of you wanting gene testing remind some of us of Hitler-scary!THINK!
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To the "anonymous" person that left the post. You are an idiot! They are doing everything that they can to save their son you need to think before you speak, better yet - just don't speak. It takes real courage to attack someone when you are anonymously sitting at home behind your computer judging everyone and spouting of hateful comments. This is about a little boy that needs help and was given a wonderful trip to Disneyworld because he is going to become very sick and may die; thus the name Make-a-Wish - IDIOT!
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THIS IS FOR THE LAST POST ANONYMOUS: IS YOUR REAR AS BIG AS YOUR MOUTH SHUT UP JUST CRAwl IN THAT HELL HOLE OF YOURS AND PERISH LOSER...
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Ya now they are going to put his twin through hell to and get a free disney vacation on top of it. These people should never have had these kids to begin with. Massively selfish !
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I feel so sorry for some of the people on here! It is SO sad to me that people like this actually do exist! Chrissy, I am so sorry about your son, you should start a website at a place called caringbridge.com, it is a site for sick kids, people from all over the world read it and you can get lots of support thru prayers and donations. Also, someone asked about bone marrow matching, anyone can register at DKMS Americas, it is free, they send you the package with the swab, you do it at home and send it back. If you are ever a match for anyone, they will contact you. I will be praying for your family. God Bless and try not to let some of the comments on here get you down, you are a great mother.
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I AM FROM A HORRIBLE UPBRINGING AND I WISH I WAS ADOPTED AND I KNOW THIS WOMAN AND I SEE THE LOVE SHE HAS FOR HER CHILDREN AND I WISH AND PRAY TO GOD EVERY DAY THAT I COULD START OVER AND HAVE A MOM EXACTLY LIKE CHRISSY SO IF YOUR NEGATIVE COMMENTS ARE AN EXACT DUPLICATION OF YOUR I Q THEN OUR FUTURE IN THIS WORLD IS DOOMED TO THE LEADERS YET TO COME YOU WILL BURN IN HELL READ YOUR BIBLE AND HAVE FAITH STOP JUDGING THIS I S A CHILD NOW LOOK AT YOURSELF AND LIVE AND LET LIVE.
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Selfish Selfish are you tired of it. The pain that poor kids will now endure at the hands of his parents, and you are just selfish. You need and IQ test to have kids with your mentality.
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To Kelcyco-or whatever your name is. I have type 1 diabetes, and I did not screen my egg or my husbands sperm, are you upset now? There is NO guarantee at all what genes could and will be passed on. Its funny Because I live every day with one of the most complicated diseases, and I am probably more healthy than you! Stop eating cheetos, get off your couch and go for a walk. Maybe then you will get enough fresh air in your head to realize that these people love their children, and are asking for help because they realized they couldnt do it on their own! For someone as shallow as you, that means they are trying to do their best and want to give their children the best! Whatever happened to, "it takes a community to raise a child?" You and Dillion are prime examples of the people that DO need a license to breed, I sure as heck dont want your or his dumb offspring running around with my kids who may have bad genes! Shallow, shallow shallow, thats what you two are!
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Selfish enough to have a child they knew they could inflict with such a disease and now holding their hands out to take care of their mess ? Ya shining example, Shannon. Why do that to a child ?
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